Whenever someone hears that my daughter is on the autism spectrum, he or she typically asks me, “How autistic is she?”
They seem to be asking how severe the autism is. Is she really autistic or is she just a little autistic?
Well, it’s not that simple.
I admit that I used to think of the autism spectrum as a linear being: You could be severely affected or maybe a little and maybe somewhere in between. That’s also typically how it is described, even by professionals.
When my daughter was initially diagnosed last year by a developmental pediatrician, there were symptoms and behaviors checked off a list during the evaluation; if you met so many of the criteria, you were considered to be on the spectrum. In my daughter’s evaluation, if she met 4 of these areas, she made the spectrum. My daughter met 12 out of 13. So if you were to think about the spectrum as a lineal chart, 4 would be a little autistic and 13 would be severe, right? This meant my daughter was categorized as severely autistic with severe developmental delays.
This type of diagnosis shaped how I thought about my daughter’s autism: My one and only child has autism and on a scale of 1-10, it is a 9+. I thought she was severely autistic. Then Rebecca Burgess came out with a phenomenal comic and my entire perspective changed.
The spectrum isn’t linear, it’s more like a circle. You can be on-target or advanced in one area, but struggle with another. This not only shows areas in which a person can struggle, but it also shows their strengths; it’s a really great way to look at the spectrum. Also, it shows how each person isn’t just a number on a lineal scale; they fit somewhere on a very complex chart. Since this chart is a much larger space than a 1-10 lineal chart, one can also see how people on the autism spectrum can be so different from one another. The saying goes, “When you’ve met one person with autism, you’ve met one person with autism.” That’s because each person is so unique.
Now that we’ve completed story time, I will get to the point of this post. This is a great way to look at the spectrum and I want to get the idea of this better spectrum out there. That’s why I am going to sell shirts and totes with this exceptional visualization of the spectrum. I have been fortunate enough to be able to work with Rebecca Burgess to bring this idea to life.
As you may know, I designed and printed autism awareness shirts last year and 100% of the proceeds went to a non-profit school that specializes in the education of children with autism (and other developmental delays). Since it was a great success and we were able to raise $2,000 in a very short time, I would like to do the same thing this year. I want to sell these tees and donate all of the profits to this amazing school that continues to change my daughter’s life for the better every day.
You can get the products here: